TY - BOOK AU - Pilo, Cinzia||Benedan, Laura||El Hachem, May||Galeone, Carlotta||Mariani, Paolo||Tadini, Gianluca TI - Chapter Patient-generated evidence in Epidermolysis Bullosa (EB): Development of a questionnaire to assess the Quality of Life KW - Epidermolysis Bullosa||Patient-centered approach||Quality of Life||Pseudo-Delphi UR - https://library.oapen.org/bitstream/20.500.12657/56369/1/26256.pdf ER -